Research centre for rare diseases opens in Bengaluru

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The Karnataka government has launched a research and training unit for...Read more

Challenges and strategies for rare diseases trials

Opinion |  Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment

For most patients with rare diseases, finally receiving a diagnosis is...Read more

Takeda, UNGCNI initiative strengthens access to rare disease treatment in India

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In November 2021, Takeda Pharmaceutical together with United Nations G...Read more

Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair

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Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more

ImpactGuru's crowdfunding campaign raises Rs 125 Cr for rare disease patients

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ImpactGuru.com, an integrated healthcare financing platform, has repor...Read more

Rare Disease India Foundation issues urgent demands for ensuring treatment

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Rare Disease India Foundation (RDIF) a national patient advocacy group...Read more

ORDI's 7th Edition of Racefor7 to raise awareness on rare disease

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The Organization for Rare Diseases India (ORDI) has announced the seve...Read more

Takeda India introduces diagnostic programme for rare diseases

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Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...Read more

Rare Diseases Policy 2021 focuses on indigenous research for treatment

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Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...Read more

ISCR reiterates need for investment in rare diseases research

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On Rare Disease Day 2021, Indian Society for Clinical Research (ISCR) ...Read more

Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

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To chalk out solutions and to address the key challenges of rare disea...Read more

Takeda India reaffirms commitment on World Rare Disease Day

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India is grappling with the challenges posed by rare diseases. The abs...Read more

Only 1 in 10 people with rare diseases receive targeted treatment in India

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Estimates indicate that over 70 million people are affected ...Read more

ORDI organises Racefor7 to raise advocacy for rare diseases

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The Organization for Rare Diseases India (ORDI), a not for profit orga...Read more

Rare Disease CDKL5 Deficiency Disorder Granted WHO Disease Classification

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The rare genetic disease CDKL5 Deficiency Disorder (CDD) has been desi...Read more

National Policy for Rare Diseases 2020: Patient Groups express dejection

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Government of India had formulated a National Policy for Treatment of ...Read more

Takeda expands India portfolio of rare disease therapies

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Takeda has announced the launch of its Enzyme Replacement Therapy port...Read more

Health Minister expedites process of rare disease policy formation

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With the new Government taking the chair, rare disease patients in Ind...Read more