Strand Life Sciences launches portal to help doctors with rare disease diagnosis

On the occasion of Rare Disease Day on 28 Feb, Bengaluru-based Strand ...

February 28, 2025 | Friday | News
“Rare Disease patients should receive sustained, continuous definitive treatment”

Dr Meenakshi Bhat, a pioneering clinical geneticist at the Centre for ...

February 21, 2025 | Friday | News
AstraZeneca’s Eculizumab becomes first CDSCO-approved anti-complement medicine to manage two rare diseases

AstraZeneca Pharma India has announced a Central Drugs Standard Contro...

January 16, 2025 | Thursday | News
Twist Bioscience teams up with MedGenome to diagnose rare diseases

To address the rare disease burden in India, Bengaluru-based MedG...

September 26, 2024 | Thursday | News
Effectively Addressing Growing Rare Diseases Burden

The Central Drugs Standard Control Organisation (CDSCO) stated recentl...

September 1, 2024 | Sunday | Features
Addressing Rare Disease Treatments with Biosimilars and Orphan Drugs

Governments across the world have regulatory incentives to support orp...

July 31, 2024 | Wednesday | Views
Rare disease patients appeal to new Health Minister for urgent policy intervention

With the third consecutive term win of the government, rare disease pa...

June 17, 2024 | Monday | News
“It’s imperative to manage indigenous production of drugs to reduce cost of therapies for rare diseases”

What has it been like to raise awareness about rare diseases among pat...

May 31, 2024 | Friday | Interviews
ORDI to host ‘Racefor7’ to raise awareness on Rare Diseases in 15 cities on Feb 25

The Organisation for Rare Diseases India (ORDI), a decade old non-prof...

February 12, 2024 | Monday | News
Refocusing on Rare Diseases

The scientific community has a critical role to play in accelerating r...

February 1, 2024 | Thursday | Features
Call for increased awareness on Acid Sphingomyelinase Deficiency as rare disease

Patients diagnosed with Acid Sphingomyelinase Deficiency (...

October 20, 2023 | Friday | News
Govt announces customs duty full exemption for all drugs used in rare diseases treatment

The Central Government has given full exemption from basic custom...

March 30, 2023 | Thursday | News
AstraZeneca expands portfolio by bringing rare disease therapy for patients in India

AstraZeneca India has announced its entry into rare disease therapy in...

March 1, 2023 | Wednesday | News
MedGenome Labs unveils FSHD1 genetic screening test for rare disease diagnosis

Bengaluru-based MedGenome Labs has announced the launch of a ...

February 28, 2023 | Tuesday | News
Rare Diseases Need Not Be Neglected Anymore

The death of a 13-year-old Ghaziabad boy suffering from Hunter Syndrom...

February 28, 2023 | Tuesday | Features
Addressing ‘Orphaning’ of Rare Diseases

To tackle any disease requires sustained research and development (R&a...

February 28, 2023 | Tuesday | Views
Sanofi to bring new therapies of rare diseases to India

Sanofi Speciality Care has reaffirmed its commitment to rare diseases ...

February 27, 2023 | Monday | News
Research centre for rare diseases opens in Bengaluru

The Karnataka government has launched a research and training unit for...

August 8, 2022 | Monday | News

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