Research centre for rare diseases opens in Bengaluru
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The Karnataka government has launched a research and training unit for...Read more
Challenges and strategies for rare diseases trials
Opinion | Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment
For most patients with rare diseases, finally receiving a diagnosis is...Read more
Takeda, UNGCNI initiative strengthens access to rare disease treatment in India
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In November 2021, Takeda Pharmaceutical together with United Nations G...Read more
Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair
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Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more
ImpactGuru's crowdfunding campaign raises Rs 125 Cr for rare disease patients
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ImpactGuru.com, an integrated healthcare financing platform, has repor...Read more
Rare Disease India Foundation issues urgent demands for ensuring treatment
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Rare Disease India Foundation (RDIF) a national patient advocacy group...Read more
ORDI's 7th Edition of Racefor7 to raise awareness on rare disease
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The Organization for Rare Diseases India (ORDI) has announced the seve...Read more
Takeda India introduces diagnostic programme for rare diseases
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Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...Read more
Rare Diseases Policy 2021 focuses on indigenous research for treatment
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Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...Read more
ISCR reiterates need for investment in rare diseases research
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On Rare Disease Day 2021, Indian Society for Clinical Research (ISCR) ...Read more
Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases
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To chalk out solutions and to address the key challenges of rare disea...Read more
Takeda India reaffirms commitment on World Rare Disease Day
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India is grappling with the challenges posed by rare diseases. The abs...Read more
Only 1 in 10 people with rare diseases receive targeted treatment in India
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Estimates indicate that over 70 million people are affected ...Read more
ORDI organises Racefor7 to raise advocacy for rare diseases
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The Organization for Rare Diseases India (ORDI), a not for profit orga...Read more
Rare Disease CDKL5 Deficiency Disorder Granted WHO Disease Classification
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The rare genetic disease CDKL5 Deficiency Disorder (CDD) has been desi...Read more
National Policy for Rare Diseases 2020: Patient Groups express dejection
Policy & Regulatory | News | 0 Comment
Government of India had formulated a National Policy for Treatment of ...Read more
Takeda expands India portfolio of rare disease therapies
BioPharma | News | 0 Comment
Takeda has announced the launch of its Enzyme Replacement Therapy port...Read more
Health Minister expedites process of rare disease policy formation
Policy & Regulatory | News | 1 Comment
With the new Government taking the chair, rare disease patients in Ind...Read more