Govt announces customs duty full exemption for all drugs used in rare diseases treatment

Policy & Regulatory |  News | 0 Comment

The Central Government has given full exemption from basic custom...Read more

AstraZeneca expands portfolio by bringing rare disease therapy for patients in India

Pharma |  News | 0 Comment

AstraZeneca India has announced its entry into rare disease therapy in...Read more

MedGenome Labs unveils FSHD1 genetic screening test for rare disease diagnosis

Medical Diagnostic |  News | 0 Comment

Bengaluru-based MedGenome Labs has announced the launch of a ...Read more

Rare Diseases Need Not Be Neglected Anymore

Healthcare |  Features | 0 Comment

The death of a 13-year-old Ghaziabad boy suffering from Hunter Syndrom...Read more

Addressing ‘Orphaning’ of Rare Diseases

Opinion |  Views | By Ravi Shet, Clinical Data Management Professional | 0 Comment

To tackle any disease requires sustained research and development (R&a...Read more

Sanofi to bring new therapies of rare diseases to India

Pharma |  News | 0 Comment

Sanofi Speciality Care has reaffirmed its commitment to rare diseases ...Read more

Research centre for rare diseases opens in Bengaluru

Healthcare |  News | 0 Comment

The Karnataka government has launched a research and training unit for...Read more

Challenges and strategies for rare diseases trials

Opinion |  Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment

For most patients with rare diseases, finally receiving a diagnosis is...Read more

Takeda, UNGCNI initiative strengthens access to rare disease treatment in India

Healthcare |  News | 0 Comment

In November 2021, Takeda Pharmaceutical together with United Nations G...Read more

Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair

People |  News | 0 Comment

Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more

ImpactGuru's crowdfunding campaign raises Rs 125 Cr for rare disease patients

Healthcare |  News | 0 Comment

ImpactGuru.com, an integrated healthcare financing platform, has repor...Read more

Rare Disease India Foundation issues urgent demands for ensuring treatment

Healthcare |  News | 1 Comment

Rare Disease India Foundation (RDIF) a national patient advocacy group...Read more

ORDI's 7th Edition of Racefor7 to raise awareness on rare disease

Healthcare |  News | 0 Comment

The Organization for Rare Diseases India (ORDI) has announced the seve...Read more

Takeda India introduces diagnostic programme for rare diseases

BioPharma |  News | 0 Comment

Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...Read more

Rare Diseases Policy 2021 focuses on indigenous research for treatment

Policy & Regulatory |  News | 1 Comment

Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...Read more

ISCR reiterates need for investment in rare diseases research

Healthcare |  News | 0 Comment

On Rare Disease Day 2021, Indian Society for Clinical Research (ISCR) ...Read more

Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

Healthcare |  News | 0 Comment

To chalk out solutions and to address the key challenges of rare disea...Read more

Takeda India reaffirms commitment on World Rare Disease Day

BioPharma |  News | 0 Comment

India is grappling with the challenges posed by rare diseases. The abs...Read more