Bangalore runs to raise voice of rare disease patients

Matching strides with those of rare disease patients, a few thousand Bangaloreans participated in Race for 7, a unique event organized by the Organization for Rare Diseases India (ORDI) to commemorate world Rare Disease Day

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(Photo Courtesy: www.pkunsw.org.au)

The objective was to raise awareness for the 70 million estimated patients in India suffering from a rare disease.

The 7km event was flagged off by South Indian Cine Star Mr Kishore Kumar G, Mr Rajeev Gowda, Member of Parliament, and Mr Naz Haji, Quintiles India Head at St. Joseph's Indian High School.

Running and walking through Cubbon Park amidst a highly charged atmosphere, the event saw over 50 patients with rare diseases participate, some coming from as far away as Mumbai and Delhi.

This included Mr Nihal Bitla, a patient suffering from Progeria (the medical condition which featured in the Hindi movie Paa) who travelled all the way from Mumbai to extend his support to the cause of rare diseases.

Speaking on the occasion, Kannada Cine Star, Mr Kishore Kumar G, said, "I am humbled to be part of this noble initiative which champions the rights of people living with rare disease. It's time we all get together, create awareness and extend our support in initiating change that will help improve the lives of patients living with rare diseases. You and I can make a difference!"

 

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