Senior SC lawyer bats for rare genetic disorder patients

While offering her legal assistance to haemophilia patients, the spokesperson of Bharatiya Janta Party and senior supreme court lawyer, Ms Meenakshi Lekhi has reiterated her support to the cause of various health issues


Mrs Meenakshi Lekhi, member of Lok Sabha, BJP, New Delhi

I have raked up the issue of treating haemophilia patients at par with people having diasbilities earlier too in the Parliament and will continue to draw attention to such issues, mentioned Mrs Meenakshi Lekhi, senior supreme court lawyer & member of parliament, BJP at an event on April 17, 2015 in New Delhi.

"While the patients suffering from haemophila who suffer from disabilities are denied disability certificate by the concerned authorities, they are also denied fitness certificate as it could land doctors into a soup," the BJP MP said while talking about haemophilia patients who have been denied justice so far.

She added further, "Haemophilia can be an example for other diseases if taken on priority basis. From this diseases to sickle cell anemia, requires more efforts from the civil society and government."

Mrs Lekhi also laid thrust on the research into such diseases. She offered her assistance in coordinating such efforts at IITs or other research institutes. "Pre marital genetic counselling is a good idea to know about the disease history," she said.

The BJP MP from New Delhi constituency talked about the Swach Bharat Mission and the need to embark on preventive healthcare. "The mix of traditional curative healthcare and preventive diagnostic toools too could play an effective role in this," Mrs Lekhi concluded.

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